Please help, I don’t know where to turn to next , getting hopeless. So this may be a little long. So almost 2 years ago I started dating a guy, I was in perfect health. After I started dating him, I started having burning when peeing that was the first symptom. Then muscle twitching , then severe Pelvic pain, follow by weak legs for a short time , eye pain, ear pain, loose stool for a short period of time, the since of being unwell. The muscle twitching seem to spread all over my body, my head, my hands, my arms everywhere you can think of. I had a sore throat at one point of time, heart palpations, tingling in feet and numbness in hands when I wake I have to shake it off . I also was having jerks , in my legs while awoke or when I’m on my way to sleep . I also had a few small rashes nothing too crazy
My boyfriend at the time told me his mom died from HIV but he was negative , which I thought he was as well cause we got tested together. Test was indeed negative. However , after I started to put all of this together, there was a common denominator after me getting sick and it was him. I also started to notice he was having muscle twitching just like I and or the same symptoms .
On top of this , I was tested for a year straight after possible exposure, all negative . After a year went to get a hiv test done again, antigen was weakly positive and the antibody was negative so I was asked to retest because of possible false positive.
Went back and had extensive blood work done, I repeated the same test, had a viral load test done and a pcr. All negative . It has been a year exactly since the ‘ false positive ‘ and I have been tested on 4 different occasions after that all negative , in fact all test are negative besides hsv 1
I have seen an infectious disease doctor for the hiv testing before, I have seen a allergy/immune doctor , a neurologist who didn’t do much testing. No one seems to find anything .
I’m concerned that I have a special strain, or something that’s not picking up.
I am in a new relationship, due to all the negative testing I have been having unprotected sex and I fear him ever having anything from me .
Would do you recommend?
Thank you for your inquiry. From what we gather from the question, you were asking about what you should do after receiving multiple negative HIV test results. In regards to the symptoms you are feeling, HIV symptoms often mirror other viral infections or can be explained by other things. Testing is really the only way to know. As you have tested multiple times for HIV and have received negative results, we recommend referring to a physician for more personalized health answers.
Unprotected sex is considered a high risk activity. Condoms, when used properly are highly effective in preventing unwanted pregnancies and sexually transmitted diseases, including HIV .
Recommendation: No need for HIV test with the scenario provided, refer to a physician for other health related questions
Regards, AIDS Vancouver Helpline/Online, Ashley